Patient Health Advocate/Activist and Writer-Blogger in Michigan
I love God, my family & my fur baby! I'm an Ambassador/Patient Health Advocate & a Member of the Board of Directors for the U.S. Pain Foundation. I'm also a Patient leader for WEGO Health and a Guest Blogger & Mentor for newly DX CRPS patients for RSDSA.
I enjoy photography, videography and designing graphics. I used to be an Interpreter for the Deaf at a University hospital & a school system. I was injured in a MVA in 2002 & suffered a TBI, along with multiple injuries & surgeries. I'm Hard of Hearing with moderate (R) to Severe (L) hearing loss. I'm fluent in ASL (American Sign Language) & I enjoy doing ASL covers of songs at my YOUTUBE channel @www.youtube.com/ASLSuzyQ. I have founded "ASL Express" and "ASL Song" on Facebook, to teach & share my love for ASL.
I'm a Chronic pain patient & I spread awareness & advocate for people like myself. Writing is a passion of mine as well as blogging. I have a background in journalism and along with being a freelance writer, I write my own Blog "Tears Of Truth" @tearsoftruth.com
Since 1999, I've been permanently disabled & s/p a MVA in '02, I suffered a TBI with vision problems & Hearing loss (moderate (L)/severe (R) & I acquired 2 hearing aids. I also acquired several High Chronic Pain illnesses, such as: C.V.I.D.(Combined Variable Immune Deficiency), Gastroparesis, S.I.B.O., Gastritis, Autonomic Neuropathy, D.D.D., Chiari I, Dysautonomia/POTS, Polyneuropathy in Collagen Vascular Disease (EDS-4/Vascular), Prinzmetal Angina, Long QT syndrome & S.S.S. & I have a pacemaker.
I have had multiple surgeries, an M.I. & CVA. I was DX with RSD/CRPS in '07. In 2013 I was DX with "Full body/systemic CRPS" s/p a heart surgery in 2013. I'm a survivor! I use the pain to try and do good & I have gained knowledge from it. I'm Founder/admin. of several support groups for Chronic Pain & CRPS. One of my online groups is an International CRPS support group! I was certified by the U.S. Pain Foundation, in July '17 to lead an "in person" Chronic pain support group. I now have a monthly support group for chronic pain patients in Michigan.
Lastly, I am a volunteer for the "Chemo-angels" program. It is a non-profit organization that supplies volunteer "angels" to write cheerful letters to Cancer patients going through chemo-therapy. I have been doing this since 2005.