ME/CFS Advocates of Rochester

ME/CFS Advocates of Rochester is a group of patients with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and their supporters engaging in education, research and outreach regarding ME/CFS through meetings, presentations, media contact, interviews, research participation, publications and support. Sign up to be notified of future events and very limited emails here.

Attention Healthcare Providers: A CME is available from Medscape focused on ME/CFS. Please check it out here!

If you are a provider, or know of one, who is knowledgeable to serve ME/CFS patients, please add your name to our referral database here.

Located in Rochester, NY we provide information and outreach to meet the needs of community members in the Greater Rochester area, Finger Lakes region and Western and Central New York State. Beginning in 1988, the JCC was home to the inaugural organization CFIDS Rochester (Chronic Fatigue Immune Dysfunction Syndrome) where meetings attracted as many as 300 attendees. Today, ME/CFS advocates have become largely active on social media. You can join our monthly meetings and special events at the Meeting platform.

Myalgic Encephalomyelitis (ME), commonly known as Chronic Fatigue Syndrome (CFS) or ME/CFS, is a devastating neuroimmune disease that causes dysfunction of the neurologic, immune, endocrine and energy metabolism systems. A hallmark of ME/CFS is post-exertional malaise - a reduction in functioning and a severe worsening of symptoms after even minimal exertion. It often follows an infection and leaves 75% of those affected unable to work and 25% homebound or bedridden. An estimated 20 million men, women and children worldwide have ME/CFS.

You can reach us by email at [email protected] If you are looking for a "ME/CFS Friendly" provider in Upstate NY please complete a request here. For research and other updates, follow us on Facebook and LinkedIn.