Alagille Syndrome Alliance

Welcome to the Alagille Syndrome Alliance (ALGSA) — a dedicated and compassionate 501(c)(3) nonprofit organization serving individuals, caregivers, and families affected by Alagille Syndrome (ALGS), a rare genetic disorder that primarily impacts the liver, heart, and other organs. Founded by families for families, ALGSA provides essential resources, education, and emotional support to empower those living with ALGS. The organization actively promotes research, awareness, and collaboration among healthcare professionals, scientists, and patient communities worldwide. Through advocacy efforts, global partnerships, and community-driven initiatives, ALGSA strives to improve quality of life, enhance early diagnosis, and ultimately discover a cure for Alagille Syndrome. Guided by compassion, dedication, and unity, ALGSA continues to build hope and foster connections for every ALGS warrior and their loved ones across the globe.