My name is Larry Spain, my eight year old daughter (Hannah) was diagnosed with Arterial Septal Defect (a hole in her heart) in November 2016 and had open heart surgery in December 2016. Hannah’s open heart surgery has forever changed both of our lives. In fact Hannah and I have become armature congenital heart defect advocates, and we are now writing a children’s book together titled “Hannah's Big Heart”. We named the book this for two reasons; first because Hannah is a very loving and selfless person with a big loving heart, and secondly because Hannah’s heart is enlarged due Atrial Septal Defect. We hope that by sharing Hannah’s open heart surgery experience with other children it will reduce the stress and anxiety associated with surgery. It is our goal to help children feel more comfortable by offer a very (age appropriate) descriptive account of what a child (and their parents) can expect before, during, and after heart surgery. The book is titled “Hannah’s Big Heart” we named the book this for two reasons; first because Hannah is a very loving and selfless person, and secondly because Hannah’s heart is enlarged due ASD.

We are offering a sponsorship program to help us self-publish “Hannah’s Big Heart”. Sponsors will have their corporation’s name and logo in our book and we will be distributing the first 10K copies of our book to schools and libraries across the country, thus providing a wonderful marketing opportunity for our sponsors. We are also seeking private donations and we list financial contributor’s names in our book. Both corporate sponsors and financial contributors will receive and autographed copy of “Hannah’s Big Heart”.

If anyone has any questions or would like to talk about children with Atrial Septal Defect or congenital heart defects ( or If you’re interested in our sponsorship program) please contact me I would love to speak with you.