ME/CFS Advocates of Rochester

Community awareness advocacy and support in Rochester, NY

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ME/CFS Advocates of Rochester is a group of patients with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and their supporters engaging in education, research and outreach regarding ME/CFS through meetings, presentations, media contact, interviews, research participation, publications and support. You can join our monthly meetings at the Meetup platform.

Located in Rochester, NY we provide information and outreach to meet the needs of community members in the Greater Rochester area, Finger Lakes region and Western New York State.

Myalgic Encephalomyelitis (ME), commonly known as Chronic Fatigue Syndrome (CFS) or ME/CFS, is a devastating neuroimmune disease that causes dysfunction of the neurologic, immune, endocrine and energy metabolism systems. A hallmark of ME/CFS is post-exertional malaise - a reduction in functioning and a severe worsening of symptoms after even minimal exertion. It often follows an infection and leaves 75% of those affected unable to work and 25% homebound or bedridden. An estimated 20 million men, women and children worldwide have ME/CFS.