The Network of Tyrosinemia Advocates

NOTACares, also known as the Network of Tyrosinemia Advocates, is a global nonprofit focused on supporting individuals and families affected by tyrosinemia, a rare genetic disorder. What began as a small Facebook group has grown into a worldwide community offering education, resources, and emotional support. The organization aims to ensure that no individual goes untreated, promotes awareness, and advocates for improved newborn screening and access to care. By connecting families, sharing knowledge, and supporting research initiatives, NOTA Cares helps build a stronger, informed, and supportive global community for those impacted by tyrosinemia.