PWS Association

Student in 1032 E Brandon BLVD #4744,

🌟Welcome to Prader-Willi Syndrome Association | USA🌟

Business Description

Prader‐Willi Syndrome Association | USA was established in 1975 to unite parents, professionals, and other interested citizens to enhance the quality of life for those affected by Prader‐Willi syndrome (PWS). The organization plays a crucial role in the PWS community by providing a platform for shared experiences, advancing research, promoting education, advocating for patient rights, and offering comprehensive support to individuals with the syndrome and their families.

With chapters across most states, PWSA | USA stands as the only national PWS support organization dedicated exclusively to assisting individuals with Prader-Willi syndrome and their families at every stage of their journey.

Mission and Vision

Mission:
To empower the Prader-Willi syndrome community through shared experiences, research, education, advocacy, and support.

Vision:
To enhance the quality of life of those affected by Prader-Willi syndrome and ensure they receive the necessary support and resources.

Services and Programs

  1. Support Services:
    • Emotional and informational support for families and individuals.
    • Assistance with accessing healthcare and educational resources.
    • Crisis intervention and management.
  2. Education and Awareness:
    • Educational resources for families, professionals, and the general public.
    • Workshops, webinars, and conferences on PWS.
  3. Advocacy:
    • Advocacy for policies and legislation that benefit individuals with PWS.
    • Collaboration with other organizations and stakeholders to promote awareness and research funding.
  4. Research:
    • Funding and supporting research initiatives aimed at understanding PWS.
    • Promoting and disseminating research findings to the community.
  5. Community Building:
    • Facilitating connections among families, caregivers, and individuals with PWS.
    • Organizing community events and support groups.

📱Social Media Presence

🐦Twitter:https://twitter.com/PWSAUSA
👍Facebook:https://www.facebook.com/PWSAUSA
🔗LinkedIn:https://www.linkedin.com/company/prader-willi-syndrome-association
📺YouTube:https://www.youtube.com/user/PraderWilliSyndrome

💼Contact Information💼

🌍Website:https://www.pwsausa.org
📞 Phone: +1 941-312-0400
🏠Address: 1032 E Brandon BLVD #4744, Brandon, Florida, 33511, United States

💳Payment Types Accepted: Donations

Founded: 1975

How to Support

PWSA | USA operates primarily through donations and the generous support of individuals and organizations.