Twinkle VanFleet

A chronic pain patient and advocate dedicated to providing a flavorful medley of health care, policy, research, clinical trials, patient perspectives, peer sites, groups, blogs, articles, non profit's, communities, general awareness, self journey, poetry, and other information or interests that you might find either useful or enjoyable from each.

As Advocacy Director for the Power of Pain, my policy efforts include but are not limited to, California legislation, abuse deterrent formulations, access to care, step therapy/fail first, the PA Shuffle (prior authorization), specialty tier, and other pain care issues .

I've volunteered from home as an advocate for CRPS/RSD since 2003. Prior to that advocating for end of life and inoperable cancer rights. (1990) initially taking interest in 1984-85.. I do work hard to get out and advocate in person. I don't endorse any specific option, rather I share information whether I personally have an interest in it or not. Many of my views are that of my own and should not reflect negatively on the Power of Pain Foundation. My thoughts and beliefs on past, present, and current issues are diverse. I am a thought provoker and sometimes controversial. I advocate for injured workers and help provide work comp updates. My injury occurred Jan 2001, CRPS type 2/Causalgia diagnosis 2003.

Highlights-

http://www.liveongiveon.org

2015 Medtronic Bakken Invitation Award honoree

Follow us on Facebook-https://www.facebook.com/LiveOnGiveOn

http://www.nasdaq.com/press-release/the-medtronic-bakken-invitation-award-honors-12-patients-from-around-the-world-for-giving-back-20151214-00566

http://finance.yahoo.com/news/medtronic-bakken-invitation-award-honors-160102838.htm

Prescribing Task Force: California Medical Board 2013 - 2015

State Pain Policy Advocacy Network (SPPAN) 2013-Present

Press Conference- #POPF, Co Sponsor CA AB 623 with Assemblyman Wood at the California State Capital March 24, 2015

Testified on behalf of the CMA (DeSaulnier)

Diamond Homer Trophy, Poetic Excellence, Famous Poets Convention, Disneyland Hotel, Anaheim California, 1998.. Actor, Joel Weiss was my coach.

Always be as well as you can be,

I wish you pain eased days and nights.

~Twinkle

If you ask me what I came into this life to do, I will tell you: I came to live out loud. ~Emile Zola .